Why start with death?

Even I would have to admit it wasn’t the obvious way to go. The last three weeks have been amazing with the whole group coming together, but I have been on this project since May and during the intervening period I went ahead with my own fieldwork. Eventually all eight of us will start on our respective ethnographies with hopefully strong common threads. But we have agreed that there will also be some degree of autonomy in which we each have some themes of our own, something probably essential in a discipline such as anthropology.

So in May I decided that my own theme would be to start my study in collaboration with a hospice. This was possibly a very stupid move since our project is centred upon the consequences of social networking sites, and the one group who are least likely to be using this sites are the elderly who, in turn, make up the majority of those who are terminally ill. So why work with a hospice? I guess there were three reasons. The first was that for such a large grant from the public purse I felt that ethics is not just written consent forms, ethics is also whether your research directly benefits the welfare of populations who, in some sense, are paying for it. As it happens, the hospice director was interested in the likely long-term impact of new media and had asked if I could work with them. The health service has been incredibly conservative on this front, the NHS is still mostly based on fax and letters, so this seemed potentially a useful contribution.

The second was that I felt a project this big should address the big picture of anthropology, and not just our parochial ethnographies, and that, for theoretical reasons, I wanted to rethink what we understand by life as enhanced by technology and that this might be understood better in relation to the imminence of death. The third reason was that most researchers studying things like social network sites will simply focus on those alone, while for anthropology everything is context. Getting a real sense of the wider world of communications and social relations from non-users would ensure that we kept that broad context in view when it came to working on social networking sites specifically.

It’s too early to know if any of these were right, but one thing I can say, is that you would not expect that a project based largely with terminal cancer patients would be anything other than downbeat. But I have found that these patients are genuinely happy to find someone who wants to talk about something other than illness and is asking for their advice and life stories and that actually the fieldwork so far has been really uplifting and often surprisingly enjoyable.