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The ELOPE-GDM qualitative study

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Understanding what women need to help them manage GDM and reduce future risk of type 2 diabetes

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Study Infographics

By Amanda Moore, on 13 September 2023

Below you can download a summary of the ELOPE-GDM qualitative study and findings and our summary tips for clinicians. In addition, our participants said they would like an easy to digest list of tips to help them reduce their risk of future type 2 diabetes. We have created this in partnership with Sussex NHS Trust and you can also download this here.

1. About the ELOPE-GDM study

Download here:

Lived experience of diabetes in pregnancy. A summary of findings from the ELOPE-GDM study, funded by NIHR-SPCR

2. Recommendations for clinicians

Download here:

3. Tips to reduce the risk of type 2 diabetes after diabetes in pregnancy

Download here:

Missed our dissemination event? You can download the slides here

By Amanda Moore, on 13 September 2023

Thanks to everyone who attended our online event.

If you missed it or you would like a copy of the slides they can be downloaded from this link:

ELOPE dissemination event – master set of slides

Reducing risk of subsequent type 2 diabetes following gestational diabetes in pregnancy

By Amanda Moore, on 11 August 2023

We have included an ethnically and socially diverse range of women in our study, including 66% from minority ethnicities. There were four key themes we found in our discussions with women which limited engagement with type 2 diabetes prevention following a pregnancy with GDM:

  • Left at Sea
  • Building a concrete picture
  • Life gets in the way
  • I need the GP in my corner

Left at sea

Women felt left at sea postpartum, in dramatic contrast to the close management of GDM during their pregnancy. Whilst they knew about increased future risk of type 2 diabetes following a pregnancy with GDM women were unsure about whether this related to them and what they should be doing, if anything, to mitigate their future risk. This was exacerbated by having received mixed messages from healthcare teams – with diabetes care teams highlighting future risks but the messages from delivery midwifery teams suggesting everything was back to normal following the birth. Women felt very much alone, unsure and unsupported with regards to future type 2 diabetes prevention.

Building a concrete picture

Women who were aware of potential risks and who were motivated to act still struggled to build a concrete picture of what they personally needed to do. They struggled to understand their personal risk, especially if they did not consider themselves overweight.  It was difficult to make sense of fragmented information sources, some were not clear about how the physiology differed between GDM and type 2 diabetes and what that meant for lifestyle changes. Any guidance they were given tended to be quite vague. Most women would consider annual HbA1C screening but 46% were not aware of it. Even if they were there was a lack of clarity amongst women about what it was measuring and what the reference ranges meant.

Life gets in the way

Postpartum women prioritised the needs of their baby and family over their own health, which made any immediate consideration about maintaining habits developed during pregnancy. Some women tried, but motivation dwindled and it was hard particularly with breastfeeding. Most women felt that 6-12 months would be an appropriate window to be reminded about what they could do in the future to reduce their type 2 diabetes risk. For those facing social challenges and complications following pregnancy, the latter experienced especially by women of minority ethnicities, consideration of future type 2 diabetes risk was simply not a priority with other more pressing considerations.

I need my GP in my corner

Women perceived that their GP was an important ally and partner in the prevention of future type 2 diabetes, although they reported falling through the cracks between primary and secondary care, with some GPs seemingly unaware they had had GDM. Women would like a flag on the system that they have had GDM and suggest they would like GPs to consider their type 2 diabetes risk alongside their general care. They felt it crucial that they were reminded when their HbA1C annual screen was due and welcomed anything that streamlined the making of the appointment, stressing the continuing challenge of accessing primary care for non-urgent appointments.

You can download the full presentation presented at the Society for Academic Primary Care conference 2023 here: postpartum factors

Presenting the ELOPE-GDM qualitative findings at academic conferences 2023

By Amanda Moore, on 11 August 2023

The team have presented the findings of the study to academic audiences at various conferences over the summer. Above is an example of our prize-winning poster from the Royal Society Of Obstetricians and Gynaecologists (RCOG) World Congress. We have also attended the Society for Academic Primary Care Conference in Brighton and the Health Services Research conference in Birmingham. This poster can be downloaded here: HSR poster ELOPE

ELOPE-GDM Dissemination event online.

By Amanda Moore, on 11 August 2023

Presentation of the qualitative findings from the ELOPE-GDM study (evaluating the long-term outcomes following a pregnancy with gestational diabetes).

7th September, 1pm – 2.30pm

As part of the ELOPE-GDM study, looking at long-term outcomes for women after a pregnancy with gestational diabetes, the UCL qualitative team have been talking to women about their experiences of diabetes in pregnancy. We wanted to understand their lived experience and what would help them engage with managing gestational diabetes and with acting to reduce their risk of type 2 diabetes postpartum and beyond. We will be running an online dissemination event on 7th September 2023. This event is hosted in partnership with Cambridgeshire Community Services NHS Trust, one of our recruitment partners for the study.

  • For health professionals, researchers, women with lived experience and others interested in gestational diabetes experiences.
  • Hear about the ELOPE-GDM interview study findings and recommendations for care and research.
  • Find out what you can do to limit risk of type 2 diabetes after a GDM pregnancy.
  • Hear about how you can get involved with research and the benefits of doing so.

If you would like to attend or find out more please go to the event booking page at eventbrite Click here or email us at elope-gdm@ucl.ac.uk.