CICADA Stories, Bloomsbury Theatre

Carol Rivas, Amanda Moore, Kusha Anand, Alison Wu and Ozan Aksoy. This post is adapted from a blog for Biomed Central.

Even before the pandemic, many people with chronic conditions or disabilities, particularly those from minoritised ethnic groups, faced obstacles in accessing or utilising networks of support, health and social care. During the pandemic, some of these obstacles increased disproportionately, and widened the inequalities gap.

Now, during Disability History Month (16 November to 16 December), it is instructive to consider the interplay of different intersecting factors that compromise good health outcomes when considering inequalities. For example, chronic conditions such as diabetes and cardiovascular disease increase vulnerability to COVID-19 and are disproportionately (more…)

Jo Van Herwegen, Elisabeth Herbert and Laura Outhwaite.

A good grasp of maths has been linked to greater success in employment and better health. But a large proportion of us – up to 22% – have mathematical learning difficulties. What’s more, around 6% of children in primary schools may have dyscalculia, a mathematical learning disability.

Pexels / Pixabay

Developmental dyscalculia is a persistent difficulty in understanding numbers which can affect anyone, regardless of age or ability.

If 6% of children have dyscalculia, that would mean one or two children in each primary school class of 30 – about as many children as have been estimated to have dyslexia. But dyscalculia is less well known, by both the general public and teachers. It is also less well researched in comparison to other learning difficulties.

Children with dyscalculia may struggle to learn foundational mathematical skills and concepts, such as simple counting, (more…)

Photo: Jason Ilagan for UCL Faculty of Education and Society

Miriam McBreen and Jo Van Herwegen.

In our third blog post responding to the DFE’s Green Paper reviewing the Special Educational Needs and Disabilities (SEND) system, we consider what training the workforce needs so that practitioners are equipped to effectively support pupils with SEND. This involves considering the role of multiple educational professionals, including Special Education Needs Coordinators (SENCOs), teachers and teaching assistants (TAs).

SENCOs play a central role in supporting children with SEND. They coordinate children’s provision, help implement the graduated response to need, and work with key stakeholders around the child. SENCOs are currently required to have a Master’s level qualification and it is important that this qualification be maintained. It helps ensure that they have access to up-to-date research, develop critical engagement with current issues in the field, and become reflective in their practice. Indeed, Esposito and Carroll demonstrate a range of evidence that SENCOs are critically engaging with research at the (more…)

Early diagnosis is crucial. Photo:  RetyiRetyi / Pixabay

Miriam McBreen and Jo Van Herwegen.

In our second blog post responding to the DFE’s Green Paper on the future of special educational needs and disabilities (SEND) and alternative provision (AP), we look at how processes need to change to ensure the system more effectively supports these pupils.

This includes a need to improve the Education, Health and Care Plan (EHCP) process, in particular with regards to diagnosis and labelling, and to support practitioners to work more effectively with families.

First of all, the EHCP process needs updating. While the SEND code of practice suggests actively involving the child and parents, our research suggests the child’s voice is often not captured where it could be. Research from Tyan and Van Herwegen suggests the voices of children with intellectual disabilities as young as five years old can be accurately captured when professionals have appropriate training. This highlights the (more…)

Photo: olly via Adobe Stock

 Jo Van Herwegen and Miriam McBreen.

Children and young people with Special Educational Needs and Disabilities (SEND) too often report negative experiences of the UK educational system, and have poorer outcomes compared to their peers.

Responding to the Department for Education’s Green Paper on the future of special educational needs and disabilities (SEND) and alternative provision (AP), we consider how provision can be improved to ensure that more children and young people have positive educational experiences, as well as better outcomes.

In the first of three blogs, we propose ways to improve standards for supporting children with SEND, both during their time in school and beyond.

First of all, standards should be established to support pupils with SEND during transitions, such as the move from primary (more…)

Charlotte Hamilton Clark.

The week of Oct 4-10th is Dyslexia Awareness Week, when organisations promote public engagement with dyslexia, often on a specific theme. In 2021 the focus is on invisible dyslexia, including overlooked dyslexia among adults in higher education.

My new study highlights how UK university students experienced dyslexia as an often unrecognised and invisible phenomenon. The study contributes fascinating insights into students’ decisions regarding disclosure and concealment of dyslexia as an invisible identity at university and the impacts of these decisions on their self-esteem.

In the qualitative project I explored the lived experience of dyslexia from the perspective of students who had registered for dyslexia support at four UK universities. The study used both email and phone discussions to investigate students’ views and theorised the impact of universities’ approach (more…)

Philip D. Parker, Jake Anders, Rhiannon Parker,  and Taren Sanders.

We have all met the parent who thinks their kid is the next Picasso or Einstein regardless of the evidence. But it’s hard to know if these beliefs are helpful or harmful.

Overly optimistic parents could reduce their kids’ drive to work harder and give them a false idea of the opportunities available to them. Or this same optimism could fill the child with confidence, kindle their self-belief and give them the courage to try harder.

We set out to discover which of these possibilities is most likely. We found a mother’s optimism about how good their child is in maths and reading (more…)

The In-Touch team, UCL Knowledge Lab

Music is a part of our everyday lives: many song lyrics both ‘touch’ us and tell stories of our tactile relationships with one another.

The interdisciplinary InTouch Project at UCL explores the social implications of digital technology for touch communication. As a fun side-project the team has compiled a Touch Playlist – and it seems every music genre loves a bit of touch!

This winter season, lit up by Diwali, Hanukkah, Christmas and Hogmanay, heralds its own set of songs packed with tactile metaphors, invitations to touch, and felt memories. Here, we share a few thoughts on ‘touchy’ Christmas lyrics. Indeed, in the words of Queen (not The Queen), ‘it’s been a long hard year’ for many of us, in shared and different ways. How might the usual medley of (more…)

John Vorhaus.

Covid 19 presents extraordinary challenges for schools. Children with disabilities are amongst the most vulnerable pupils – and none more so than children whose disabilities are multiple and profound. What makes these children especially vulnerable is that they are often immunocompromised and their complex health needs require constant, close attention and physical contact. I have been speaking with three heads and assistant head teachers about their experience of running special schools in London during the pandemic. Names have been changed to preserve anonymity.

When the news first broke that schools would be closing in March Anita Ward, Diana Clarke and Helen Shapiro each faced a similar problem: Government announcements were principally aimed at mainstream schools, and very little attention was initially given to special schools – schools for severely and profoundly disabled children: how would they be expected to adapt so as ensure that extremely vulnerable children were kept safe and well?

In 2018 10,032 children were identified as having profound and multiple learning difficulties (PMLD), most of whom were boys. Children with PMLD were more likely to be (more…)

Amelia Roberts. 

During periods of upheaval, it can be particularly challenging to meet the needs of the whole family. Families now are juggling the school partial reopening, meaning that some children may be going back, while brothers and sisters are not. Not only is this difficult for practical reasons (such as getting some children to school while caring for others at home), but perceptions of fairness may well escalate. It may be hard, for example, not to meet friends when your sister can, or go to school when your brother gets to stay at home.

Explaining the situation

Social stories can be a very useful way to explain changes in circumstance to children with special educational needs. Beaucroft Foundation School have a wide range of excellent examples. ‘Going to school part time’ uses common visual symbols to explain the changes and has an excellent example of a simple visual calendar to show when a
child is at home and when at school.

Supporting the transition back into school

Communication with the school is absolutely crucial at this time. You will need to know how social distancing and deep cleaning measures are being handled so that you can (more…)