X Close

Institute of Epidemiology and Health Care Blog

Home

Menu

Archive for the 'Social inequality' Category

Working as a Community Researcher on the Brent Integrated Care Partnership

By Eleanor Mason, on 4 October 2023

A photograph of a town garden in Brent with plants, a park and a grassy area.

A blog from Community Researcher Sean Chou in his own words. 

‘It’s important to get feelers out there and really get to know the community.’

At the beginning, I felt nervous about being a community researcher. It was a role that I was keen to get stuck into – having studied Anthropology as an undergraduate, I felt equipped with the curiosity and listening skills needed to glean insights from residents. But it was also one that I really didn’t want to get wrong. What if I said something offensive? What if I came off so keen to chat that it came across as awkward?

All of these doubts were soothed by the words from my research supervisor, Tamsin. I had regular weekly catch up meetings, as well as one-to-ones, where I had a safe space to share feedback on research and how I felt during research. It felt humanising to acknowledge that research has a person-centred approach, that the researcher themselves could have fears or internal doubts to reckon with.

But it was Tamsin’s personal touch that lit a flame in me. Tamsin had a keen interest in sustainability and building resilient communities with environmental solutions, and I was impressed to see how an interest in helping the local community in Brent could be knitted together with one’s own vision for what a better society could look like.

For me, that was about the community helping to lead change. Our research project looked at health inequalities in Brent, as well as how residents used community assets to tackle these inequalities. These went beyond just the ‘obvious’ physical assets – libraries, parks, civic buildings, to include the ones the communities valued themselves. Partnerships, mutual aid groups, classes, all of these are relationships that tie us together and ultimately make up who we are as holistic, social beings, rather than atomised, individual units.

This is especially the case [for our?] health. I attended community events organised by Brent Health Matters (BHM) which aimed to promote positive health outcomes, healthy living as well as register and signpost attendees to health and medical services such as GP registration.

I was able to see how attendees were tied together – or sometimes not, and sometimes made vulnerable, by their health: a mother with two children attended an event, not speaking English, but helped by my fellow researcher to translate her symptoms so the GP could make the right diagnosis. A woman who attended a floristry class saying that she attended because this helped with her mental health and make friends; if she wasn’t here today, she didn’t know what she would be doing. A night shift worker opening up to a BHM health worker about diabetes in her family, before breaking down crying about her family in Bangladesh. As I watched her be taken away by the health worker to talk somewhere more private, away from prying eyes, I was reminded of how health is a sensitive, emotionally charged experience for people. When we’re told by someone we love that we’re unhealthy, it often comes off as judgement – ‘You’re not doing enough to get healthy, you’re slacking’. But our physical health is often entangled with work, family, caring responsibilities that make it difficult to recentre our lives around living healthily.

But it also reminded me that some groups are more susceptible to poor health outcomes than others – those with low incomes, women, community groups, those from migrant backgrounds. BHM targeted these groups by bringing events to them. Community centres, places of worship, football pitches, food halls – all of these were places used to bring health services and awareness to communities, and ultimately bring communities together.

I was fortunate enough to be able to connect with the Chinese community. As a British Taiwanese person myself, I felt well placed to strike up rapport with those active in the community working across many different charities and local venues. I had conversations in Mandarin Chinese and bonded with members of the community over shared cultural festivals and cuisine. But I could also make sure that research was done for and by us, not just about us – in interactions and interviews, I made sure to emphasise the importance of residents’ views and ensure that research was led by residents’ interests from the ground up.

I am proud then to call myself a community researcher. From my experience, I have been able to connect my personal background with relationships that structure people’s wider access to healthcare. It remains vitally important that such work, centred on lived experiences, recognising others, listening to in-depth stories, continues through participant observation and interview research methods. Throughout my time as a community researcher, I’ve learned how to approach residents with empathy and curiosity, learned to tap into their views with interviews and produce data that represents the multi-dimensional, complex lived experiences residents have. Such data underpins ultimately why it’s so important to conduct community research, to see the people we study as holistic beings made up of different commitments and relationships, but ultimately brought together to be with others and lead a good life.

Want to find out more about the experience of our Community Researchers? Take a look at this zine by Sarah Al-Halfi.

Humanitarianism – what does it mean today?

By e.schaessens, on 18 August 2023

Woman holding an IV drip bag.

On World Humanitarian Day, Dr James Smith, Lecturer and Co-Director of UCL’s MSc in Humanitarian Policy & Practice reflects on the evolution of the humanitarian landscape and some of its inherent challenges.

The United Nations have stressed that the number of people requiring immediate ‘humanitarian assistance and protection’ has never been greater than this year. In the absence of concerted action, the impact of violence, widespread lack of access to essential public services, and wilful political indifference and neglect will continue to generate catastrophic levels of human suffering and ecological damage.

If we define humanitarianism in its broadest sense as a belief in the equal value of human life and a concern for human welfare, then the need for some form of humanitarianism appears as urgent as ever.

At the same time, popularised expressions of humanitarianism have shifted and changed over time. Humanitarian values have been institutionalised and bureaucratised, and corresponding systems and sectors have formed and grown. Now-dominant forms of humanitarianism have histories and contemporary articulations that are intimately tied to capitalism, colonialism and whiteness. Relatedly, criticism of the humanitarian system and its interventions has increased exponentially in recent years, driven forward by scandals that detail abuses of power, the undignified treatment of people in vulnerable situations, and a failure to enact the radical changes needed to alter how financial support is generated and distributed, or the means by which communities can take control of their own decision-making.

The growing number of instructive critiques of humanitarian action should inspire us to identify new ways to teach, study, and enact humanitarian values. It is increasingly clear that existing institutions, systems, and processes need to change and adapt in order to practice an ethics of care and concern. At the same time, calls for transnational solidarity (consider, for example, the vibrant civil society movements that pressed for equitable access to COVID-19 vaccines), and global resource and knowledge sharing, are strong. The fundamental values that define humanitarianism can support and amplify these calls.

With UCL’s new MSc in Humanitarian Policy & Practice we are enthusiastic about working with students and professionals that are representative of the current and future global humanitarian workforce in order to think creatively and critically about humanitarian values and ethical and effective forms of humanitarian action. In doing so we will ensure students have the ability to develop programmes while continually interrogating foundational values, principles and motivations, and to design research studies while thinking critically about the politics of knowledge production, alongside several other priority topics.

By taking these steps we hope to contribute towards future humanitarianisms that enact a concern for our shared welfare in a way that is equity oriented, justice motivated, and solidarity driven.

Fuel and Food Poverty in the UK must be addressed before the energy price hike this Spring

By e.schaessens, on 18 January 2022

Written by Rebecca Barlow-Noone, a student on the MSc Population Health programme.

During the pandemic, inequalities in the UK have been brought into sharp relief with a rapid rise in food and fuel poverty, which I documented last year and have seen first-hand as a volunteer for Lambeth Foodbanks. Yet with fuel price caps set to skyrocket in the coming months and no plans to protect those on low incomes, it is likely to push even more people below the poverty line, forcing many to decide whether to ‘heat or eat’.

Foodbanks during the pandemic

Compared to 5 years ago, Trussell Trust food bank demand has increased 128%. Between April 2020 and March 2021, 2.5 million emergency food parcels were delivered in the UK by the Trussell Trust, representing a 33% increase from the previous pre-pandemic year. Furthermore, in December 2020, high levels of child food poverty in London led to additional food parcel distributions by UNICEF. This is despite the £20 per week Universal Credit (UC) uplift introduced in March 2020 in response to the pandemic.

The effect of Universal Credit cuts, energy price hikes, and inflation

As winter approached in late 2021, people on UC saw the tightest squeeze yet. The benefits uplift was cut, leaving recipients £1,040 per year worse off; prepayment energy tariffs saw the highest price increase of £153 to £1309 per year, which is used more by those on low incomes than high incomes; and inflation hit a 10-year high. While a taper rate of UC was implemented shortly after the uplift was cut, this only benefitted claimants who were already in work, and did not apply to people receiving legacy benefits.

I am deeply concerned how rising fuel costs this April will affect those already feeling the effects of the cut and price cap increase. When speaking to clients, I often hear how hard it is to make ends meet. I hear from parents forgoing meals for the sake of their children, and elderly clients unable to pay the higher energy bills through the winter. This is only set to get worse, with Age UK estimating that fuel poverty in the elderly may reach over 150,000 without financial protection this spring. It is unacceptable for people to be treated so poorly in a wealthy society such as the UK, at a time when they need the most support.

As costs of living increase for all, now is the time to increase support for those whose incomes at current UC rates do not allow for basic standards of living. Foodbanks across the UK represent an important lifeline, but this cannot be considered the norm and should not be relied upon by Government. The current rise in food bank reliance and the impending rise in fuel costs demands scrutiny into the social policies that are failing to adequately support those in need, to ensure those at most risk are protected from the increasing fuel price cap.