By Kieron L Jones, on 3 September 2013
Your input needed on data sharing and access issues
The Expert Advisory Group on Data Access (EAGDA) is seeking input from research data users to better understand how they discover, access and use existing research databases.
EAGDA was established by the Wellcome Trust, Cancer Research UK, the Economic and Social Research Council, and the Medical Research Council to provide strategic advice on the emerging scientific, legal and ethical issues associated with data access for human genetics research and cohort studies.
They are asking users of secondary datasets to complete a short online survey covering:
- factors that constrain discovery of useful datasets
- barriers to effective data access
- processes to protect data confidentiality
- actions funders and study leaders might take to accelerate data access
- barriers to effective data linking
- benefits of data sharing
- data management practices
The survey is open to all researchers who use secondary data, and offers ample opportunities for open-ended responses. To complete, click the link below.
The consultation will close on 9 September 2013, and the results will be presented at the next EAGDA meeting on 14 October 2013.